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Family Fights for Universal Screening for Son's Rare Disease
Nikola's Law: Committee declines to add rare disease to newborn screening, parents and legislators t
Making The Case for Newborn Screening
Advancing Newborn Screening Through Genomics
At the Heart of Newborn Screening: Families Making Change - Meet Our Ambassadors
Newborns now screened for a rare disease in addition to traditional testing
From Lab to Clinical Trial: Rare Disease and Newborn Screening
Newborn Screening Gives Jasper a Chance at Life
Early screening helps local infant thrive after rare genetic diagnosis
Parents fight to add son's rare disease to infant screenings
Olathe family finds joy in midst of rare disease battle
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Last Updated: October 3, 2026
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Nikola Grujicic was a content and "perfect" baby, until a Lauren Wilson's son only received his diagnosis as a For all questions, please contact info Shane Philipps is a happy, sweet 17-month-old baby. But he is also battling a WAVY News 10's Andy Fox reports. Alexion and partners are researching ways to improve the accuracy of genomic In this video, you will meet some of our incredible Navigate In this webinar, our speakers talk about how This video debuted at the KrabbeConnect 2021, A Million Dreams Gala. Learn about Jasper who was in foster care, was identified ... November is Prematurity Awareness Month, and one Lee's Summit The heartbreaking yet inspiring story of a 5-month old girl battling an extraordinarily
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